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Rett Syndrome Awareness Month

Effective Date: Monday, October 1st, 2012

WHEREAS, Rett Syndrome is a neurodevelopmental disorder occurring in approximately one in every 10,000 to 15,000 female live births, nearly always affecting girls. On average, a girl is born with Rett Syndrome every two hours; and

WHEREAS, symptoms do not manifest themselves until six to 18 months after birth, when a child’s development will slow or even regress. A child may experience seizures and breathing difficulties, develop scoliosis, and no longer be able to walk, control hand movements, or execute a desire to move at all. Tragically, a child may even lose an existing ability to speak; and

WHEREAS, at least two Alaskan families have a young child affected by Rett Syndrome; and

WHEREAS, treatments that exist for Rett Syndrome are only therapeutic, assisting with physical handicaps. There is currently no cure for Rett Syndrome; and

WHEREAS, scientists and researchers in the United States and across the globe are dedicated to finding a cure. Laboratory models have provided hope that it is possible to arrest or even reverse the symptoms of this disorder; and

WHEREAS, we recognize those in our state dealing with this devastating disease, and extend our appreciation to all who support their families and caretakers, working to ensure the best possible quality of life for these precious Alaskans.

NOW, THEREFORE, I, Sean Parnell, Governor of the State of Alaska, do hereby proclaim October 2012 as:

Rett Syndrome Awareness Month

in Alaska, and urge all Alaskans to learn about Rett Syndrome, and offer their support and encouragement to families affected by this illness.

Dated: September 11, 2012

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